Nice article. Still not quite sure where I fit in, since my normal cytos put me in the intermediate risk group. I think most hem-oncs would still recommend putting off transplant until relapse because the stats are about even as to disease-free survival: 40%. Personally speaking, had I gone straight to transplant, I (1) may or may not have survived or (2) may have survived the transplant with its associate gvhd risks or (3) survived the transplant and relapsed anyway. Instead, I got 13 months of remission, survived transplant with overall good quality of life but relapsed after 19 months. Of course now it's tougher to get into remission again.
All these "what ifs" are a struggle for doctors and patients. What do you choose. So far my overall survival has been 3+ years, a pretty good run when it comes to aml. Only time (and guesswork) will tell if I took the right treatment path when I opted against transplant in first remission.
Sorry this is so long-winded but I've ruminated a lot about he issue.
Welcome to my blog, Run for Dori. In 2007, my wife, Dori, battled acute myelogenous leukemia and received a bone marrow transplant. She has recovered almost fully, thanks to the miracle of science, her will to survive, thousands of soldiers before us, her caregivers and the grace of God. Dori and I continue to support several programs dedicated to finding a cure for blood cancers and assisting patients in need, including the National Marror Donor Program that helped save her life. Please join us in these pursuits.
Married to beautiful, loving Dori. Father to two exceptional children: Kathryn and Will. Work in public policy and advocacy. Enjoy running, the outdoors, Vanderbilt sports, music, reading and making a difference for people.
1 comments:
Nice article. Still not quite sure where I fit in, since my normal cytos put me in the intermediate risk group. I think most hem-oncs would still recommend putting off transplant until relapse because the stats are about even as to disease-free survival: 40%. Personally speaking, had I gone straight to transplant, I (1) may or may not have survived or (2) may have survived the transplant with its associate gvhd risks or (3) survived the transplant and relapsed anyway. Instead, I got 13 months of remission, survived transplant with overall good quality of life but relapsed after 19 months. Of course now it's tougher to get into remission again.
All these "what ifs" are a struggle for doctors and patients. What do you choose. So far my overall survival has been 3+ years, a pretty good run when it comes to aml. Only time (and guesswork) will tell if I took the right treatment path when I opted against transplant in first remission.
Sorry this is so long-winded but I've ruminated a lot about he issue.
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